I had the pleasure of meeting and photographing the Pots in July. I knew of the Pots  since we run in some mutual circles, so it was great to finally be able to meet up with them and learn more about their situation and meet their daughters.  I could write about their challenges but instead I’ll cut and paste from the Pot family blog:

We are parents of four beautiful daughters: Emily, Sophia, Rachel and Janneke. Though we celebrate the development and gifts of all our girls, Rachel and Janneke were born with an unspecified syndrome that is under investigation. This syndrome affects their ability to eat, move, and meet “normal” milestones. Rachel and Janneke are exclusively g-tube fed, significantly developmentally delayed, and have portacaths for vein access. Our day is dictated by a schedule that starts at 6 A.M. and ends just before 11 P.M. Feeds, hydrating flushes, physio therapy, medications – and of course, quality family time- fill the time. We are so thankful for our nursing care and the respite workers!

Please take some time to visit the family blog HERE but only after to check out the images we captured. God shone on us that evening

Janneke (16ish months) is mesmerized by her hands.

Sarah mentioned that in sign language, both girls hands are permanently fixed in the  “I love you” phrase.

Thanks Ralph, Sarah and girls for a lovely evening! I love the images we captured.

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